I picked Mayo.
On June 2, we will pack up the car and head up to Rochester, MN. My appointment is at 7:30am on June 3 with a Gastroenterologist. Based on that appointment, my next couple days may include meetings with other doctors, surgeons, oncologists, dietitians, nutritionist, and may include additional testing.
I’m hoping they start this whole process over. A new colonoscopy, new blood work, new scans. I’ve made some pretty drastic changes to my eating patterns the last couple weeks, including a juice fast, avoiding gluetin and alcohol, and now trying to alkalize my body by avoiding all meats and dairy.
The best case would be that I qualify for a new procedure that removes flat tumors from the colon, then am referred to their integrative and alternative medicine department to work on future prevention methods.
My worst case would be finding out the cells have spread outside the colon and into other organs. This would result in immediate surgery, and either chemotherapy and radiation.
Right behind that being the worst news, would be that nothing has changed at all and I remain in this dead-zone. I read that the type of cells I’m forming weren’t event recognized as cancer in the US until 2008. What if that still isn’t right? One of the nurses I talked to asked if I’d ever be interested in talking to a support group for Ulcerative Colitis based on my “unusual situation.” She will contact me in “a couple months.” I can’t even commit to things in mid-June, I can’t imagine a couple months.
It’s still hard for me to grasp the entirety of all the information I’m given. I spend most of my free time now, getting lost in what seems like every possible nook and cranny looking for solutions. Making phone calls to people who have fought off cancer without surgery, and watching their videos. I read books, listen to CDs, talk with doctors, find new recipes, only to have my hopes crushed by a minor comment made from a friend, or one sentence that contradicts everything I’ve let myself believe.
It’s a roller coaster, and it’s draining. And this is only the beginning.